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Duchenne muscular dystrophy (DMD), a rare condition in females, causes muscle weakness. 27-year-old Stephanie, who was diagnosed with this condition at three, was told that her life expectancy would not exceed seven years
Stephanie has come to terms with her condition and no longer worries about the opinions of others. (Instagram/steffswrld_)
Humans experience life in vastly different circumstances. While the physically healthy may lament their lack of wealth, they often overlook the immense gift of good health bestowed upon them. It is only when confronted with the struggles of those less fortunate in matters of health that we begin to appreciate the true extent of our own good fortune.
The life of a woman is often fraught with challenges. In a remarkable case, one woman faces the adversity of an exceptionally rare condition, affecting only an estimated one in fifty million individuals worldwide. Her resilience is evident in her daily life, as she navigates the world with fifteen iron screws implanted in her head.
A video recently posted on the YouTube channel Truly features 27-year-old Stephanie, who lives with a rare condition that makes walking nearly impossible.
Duchenne muscular dystrophy (DMD) is a condition that primarily affects males. The occurrence in females is exceptionally rare, estimated to be one in fifty crore. DMD is characterised by the progressive weakening of muscles over time. Following her diagnosis at the age of three, her mother was informed that her life expectancy would not exceed seven years.
However, the woman suffering from this rare disease defied doctors’ predictions and lived beyond their expectations. However, over time, her body weakened, leading to scoliosis, a condition causing an S-shaped curvature of the spine. This put significant pressure on her right lung.
To address this, doctors decided on a surgical procedure involving the placement of 15 screws into Stephanie’s skull. These screws are attached to a metal band known as a halo. The halo is connected to ropes that extend above Stephanie’s head.
By pulling those ropes, the bones in her spine straighten, which reduces the effect of her scoliosis. Initially, Stephanie wanted to undergo surgery, but when she discovered it carried a life-threatening risk, she decided against it. Now, she will live with this condition for the rest of her life, cared for by her mother and brother. Gradually, Stephanie has come to terms with her condition and no longer worries about the opinions of others.
